How can the results of exposome research further the right to health for all?
And how can this be achieved in an ethical way, respecting the rights of those whose data and tissue are being used?
In his contribution to the HEAP symposium highlights series, Evert-Ben Van Veen, a lawyer specialising in health and privacy law, explores the tension between individual control over data and tissue, and big data research.
Despite the huge challenges this presents, he argues that a balance can be struck through data governance. In the case of data cohorts, good governance can provide clarity and accountability when data and tissue is used for further research or sub-studies.